RESEARCH & ADVOCACY SERVICES
The SSE has a long history of involvement in disability advocacy. We value the voices of people with lived experience and ensure this is heard during advocacy work. We promote parent empowerment to collectively challenge the lack of service delivery. Parents are equipped to understand how knowledge about key national policies can be used to ensure the rights of their children are upheld.
Through ongoing advocacy and contribution to new policy, we want to play our part in building a more inclusive society.
PARENT-LED RESEARCH
“Mothers carry the weight of caregiving and problem solving alone, yet are not recognized as knowledge holders to their child’s needs and rights” ~Erna Van Der Westhuizen, Parent Champion Network Team.
The SSE are experienced in training parent researchers and field workers, and believe that parents are important knowledge holders about their own child’s needs and abilities.
When parents are partners in research and involved in not only conducting research, but in understanding and disseminating findings, they are able to advocate for their rights and the rights of their children.
THE PARENT NETWORK
Parents of children with disabilities are often isolated from support and unaware of existing information and resources.
The Parent Network is a digital community that enables parents to assist each other by connecting, learning and taking back control to advocate for their kids. The Parent Network connects a digital community of knowledge creation, support and training; breaking the cycle of isolation and giving a voice to those marginalised by stigma.
Contact the Parent Champion Network directly or via our website. Email: erna@shonaquipse.org.za or call/Whatsapp Erna on 071 371 9103.